tag:blogger.com,1999:blog-32414509.post8458310535407905447..comments2024-03-25T00:15:56.707-06:00Comments on Tracing the Tribe: The Jewish Genealogy Blog: Genealogy tracks rare diseaseSchelly Talalay Dardashtihttp://www.blogger.com/profile/10930641777765846278noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-32414509.post-55099071538187708222010-12-06T18:46:30.747-07:002010-12-06T18:46:30.747-07:00My sister in law has just been diagnosed with ppnd...My sister in law has just been diagnosed with ppnd. She was related to the Newells. Her mother passed away from the same thing. If anyone has heard of any treatment that can help please contact maveri33@aol.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-32414509.post-52310363390503094292009-06-06T15:47:15.808-06:002009-06-06T15:47:15.808-06:00The family was lucky to find a doctor that kept wo...The family was lucky to find a doctor that kept working the case genealogically to find answers. Dealing with such a situation is very difficult within the family as individuals make personal choices. Thanks for writing, Becky!Schelly Talalay Dardashtihttps://www.blogger.com/profile/10930641777765846278noreply@blogger.comtag:blogger.com,1999:blog-32414509.post-11881883465099086132009-06-04T23:54:57.780-06:002009-06-04T23:54:57.780-06:00Wow. This story is so sad and really makes you th...Wow. This story is so sad and really makes you think. The accompanying story about how the family is dealing with it and whether or not to be tested or to reproduce is sobering. It really illustrates the chasm between our ability to diagnose a problem and our ability to fix a problem. Thanks for posting the story.Beckyhttp://www.familypursuit.comnoreply@blogger.com